Like any one who is struggling with some health issues, life begins to take shape around a new kind of cadence––that of tests, waiting for results, and doctor’s appointments.
The last two weeks have seen that rhythm repeated a number of times. The beginning of the month began with a CT scan, then waiting for the results from that and the inevitable appointment with a doctor to discuss said results. Adjustments were made to my meds, and then we waited another week for a follow up appointment from another doctor to go over those changes and review any further results. Then the wait was on for my bronchoscopy, which happened this past Monday. And now we wait for the microbes and all the stuff that could be growing in my lungs to grow out in a lab somewhere, and then in short order we will have another appointment to review those results. I am not complaining, it is just always amazing how being sick can keep one so busy. So, what are the result of these most recent tests? Unfortunately, it appears that the two infections that my body was fighting, and which seemed to have caused my acute rejection, are still down there in my lungs. My doctors were hoping that the long course of medications I was on from April to June would have killed them off, but it appears we fell short. From what I understand, the infections are not totally active doing damage, but they do pose a threat. I’ve therefore been restarted on some of the meds I was recently taken off of. Overall, I am still feeling good. My weight has plateaued as I am more active now, my energy is up and I feel I am still gaining muscle. Carrie and I find the disparity between how I’m feeling and the state of my lungs to be quite interesting. Because I am feeling well, we kind of allow ourselves to think that my lungs must also be improving, but when we get test results back and speak to the doctors it is still mostly a litany of bad news and confirmation that these lungs are shot. We are incredibly grateful for how I feel, and the doctors see it as very good that I am feeling well and gaining strength, as they want me at my strongest going into transplant. Once again, thank you for all your support and prayers during this journey. We feel your love, and we know that in all of this we are resting in the hands of God.
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George Keulen's BlogWelcome to my blog. This is a place to find periodic updates on life's ups and downs as I face some old/new health challenges. Some of the updates will be written by me, while others will be updated by my wife, Carrie. Archives
September 2024
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