Maintaining

​I realize it has been awhile since last posting - the truth is that there just hasn’t been that much new to update on. Things have been cruising along for the past couple weeks. Carrie and I were able to get away for a couple days last week, which was very nice. I continue to go for daily walks and add in some strength training where I can. Protein and healthy weight gain are still the name of the game when it comes to my diet. My breathing tests continue to inch up ever so slightly from week to week, with two weeks ago seeing a pretty significant jump. At the end of July, I recorded at 10% increase in my lung function from the beginning of the month, so that was pretty awesome, and I am only 5 pounds off from my original weight from before I got sick. (I had lost 25 pounds in April and May).
 
In spite of these gains over the past month, I will still need a transplant, but I am still not waitlisted yet.  The doctors are pretty much taking it week to week. This week I am repeating some of the original tests I did back in May during my pre-transplant work up. I have made so much unexpected progress that the doctors are wanting more recent data in order to make their decisions about when to waitlist, and then the ultimate decisions around my eventual transplant.  
 
So, we continue to live and to wait, just taking life week to week. We try not to think too much about the future, but to live in the present, thinking about what needs to be done today to make the most of this time.